Top 10 Inspiring Scoliosis Instagram Accounts to follow

Inspiring Scoliosis Instagram Accounts: My Top 10

Inspired by my own Instagram obsession, I thought I’d list my top Scoliosis Instagram Accounts to follow. 

I must admit, I am a little addicted to Instagram at the moment! Apart from Pinterest, Instagram is the main social platform that I use to try and raise awareness of this blog and scoliosis in general (shameless plug – you can follow me on Instagram here!)

The thing about Instagram is, it can be incredibly inspiring IF you follow the right accounts. I made it my mission late last year to unfollow any account that doesn’t inspire me, motivate me, or make me feel good about myself. 

I find Instagram is a great platform if you have a certain interest/niche – I love it as it’s great for connecting with other runners and those with scoliosis. I feel like over time I have built up a little community of friendship and support on there which is lovely and can be very motivating!

Below are 10 scoliosis related Instagram accounts that I enjoy following and am inspired by (in no particular order).

I’m sure I have missed some so please feel free to share any accounts that you are inspired by in the comments below 🙂


Inspiring Scoliosis Instagram Accounts to follow: My Top 10

1. Eva Butterly @evabutterly

Inspiring Scoliosis Instagram Accounts to follow - Eva Butterly

Eva is a PT and Online Coach for Scoliosis. She has created a range of podcasts discussing scoliosis and offering practical tips and advice for those of us with the condition. On her Instagram she shares strengthening exercises and inspirational images of her scoliosis. I personally find Eva incredibly inspirational to follow!

Check out her scoliosis podcasts here.


2. Mabel and the Scoliosis Runner @mabel_and_the_scoliosis_runner

Inspiring Instagram Accounts to follow - Mabel and the Scoliosis Runner

James is a runner who has not let his scoliosis stop him. I find him inspiring to follow due to my own interest in running and it just proves that even with scoliosis, you can run marathons! (My ultimate goal one day!) James has ran in the London Marathon which is my dream, and on his Instagram he shares his training and race achievements.


3. Hayley Wakefield @hayleyelysefit

Inspiring Instagram Accounts to follow - Hayley

I have only recently come across Hayley’s Instagram account but I find it incredibly inspiring! Hayley is a PT who has scoliosis and shares strengthening exercises and videos on her Instagram, she also has a scoliosis e-book.

I really want to work on my upper body strength to help with my scoliosis and my running. Sometimes I don’t know where to start though, especially with having scoliosis, so I love coming across accounts like this – it really motivates me to get going!


4. Curvy Girls Scoliosis @cgscoliosis

Inspiring Instagram Accounts to follow - CG Scoliosis

Curvy Girls Scoliosis is a peer run international scoliosis support group ran by young girls and aimed at young girls, covering 19 countries. 

Visit the Curvy Girls Scoliosis website for more details. 


5. Paige Fraser @lovingthispaige

Inspiring Instagram Accounts to follow - Paige Fraser

Paige is a model, professional dancer and choreographer who does not let her scoliosis hold her back. Check out an interview with Paige on the Beyond Scoliosis website – very inspiring!


6. Martha Hunt @marthahunt

Inspiring Instagram Accounts to follow - Martha Hunt

Martha Hunt is an American model, she has scoliosis and is proud to represent those affected by the condition. She uses her Instagram to raise awareness of scoliosis by proudly showing off her back and beautiful scoliosis scar to her 3M followers. 


7. Shano Nebel Rasmussen – @fuck_scoliosis

Inspiring Instagram Accounts to follow

Shano has severe scoliosis but does not let this stop him from bodybuilding. He shares bodybuilding and work out videos and photos on his Instagram and his posts are very positive and motivational.


8. Bent not Broken-  @Bent.not.broken7

Inspiring Instagram Accounts to follow - Bent not Broken

Bent not Broken is an Instagram account run by Rosie, who has had scoliosis surgery herself. It is a very inspiring account, dedicated to raising awareness of scoliosis.

On her Instagram page, Rosie shares beautiful and inspiring scoliosis stories, as well as some amazing back and scar photographs.


9. Scoliyogagirl – @scoliyogagirl

Inspiring Instagram Accounts to follow - Scoliyogagirl

Based in Prague, Czech Republic, Veronika shares back care and yoga tips for scoliosis on her Instagram, as well as raising scoliosis awareness.

Yoga is something that I have recently taken up and it’s so good for those of us with scoliosis – I really need to make an effort to do it more often!


10. Anna Martin @annamartinfitness

Inspiring Instagram Accounts to follow - Anna Martin Fitness

Anna is a PT and fitness entrepreneur sharing her top fitness tips for training with scoliosis regularly on her Instagram. I love her page and find it very motivational, as sometimes I struggle to know where to start/what exercises to do when it comes to weights and strength based training. 

 


Are there any I’ve missed?

Share your own favourite inspirational scoliosis Instagram accounts in the comments below 🙂

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Top 10 Inspiring Scoliosis Instagram Accounts to follow

Photo by Tofros.com from Pexels

Back the Back Walk

Scoliosis Awareness Day 2019: Back the Back Walk

This Scoliosis Awareness Day (June 30th, 2019) I’m very excited to be taking part in the Back the Back Walk. This is an event organised by Freya, who also has scoliosis, to raise awareness of scoliosis, as well as some much needed funds for the Royal National Orthopaedic Hospital Charity and Scoliosis Campaign Fund.

The RNOH Charity raises money to help the Royal National Orthopaedic Hospital at Stanmore provide world-class care for patients with musculoskeletal conditions, and to support the hospital’s pioneering work in orthopaedic research and education.  This is where Freya had her surgery.

The Scoliosis Campaign Fund is a joint fundraising venture between the British Scoliosis Research Foundation (BSRF), who fund research into the causes and treatment  of Scoliosis, and the Scoliosis Association UK (SAUK), a patient support charity.

 


What is the Back the Back Walk?

This summer, starting on scoliosis awareness day, Freya will be walking the entire 268 miles of the Pennine Way, known as the “Backbone of Britain,” to raise awareness of scoliosis.  The event will last 19 days and begins in Edale, Derbyshire.

As soon as I saw this event, I knew I wanted to be involved. I think it is such a FAB idea and combines two of my favourite things – hiking and raising awareness of scoliosis! I did a 10 day charity trek on the Great Wall of China in 2017 to do just that, and ever since I have been itching to get involved in something else!

Due to work and other commitments, unfortunately I cannot take part in the entire trek (I really wish I could!!!) BUT I will be there on Scoliosis Awareness Day for the first part and I can’t wait!

If you’d like to donate, get involved yourself or find out more – visit the Back the Back walk website. You can also follow the project on Facebook. 🙂

I’ll be doing lots of hikes in preparation, I love hiking and walking up in the Peak District and try to do a walk most weekends if I can fit it in.

Thanks for reading and if you’d like to get involved please contact Freya via her website or Facebook page

See you there 🙂

Louise X

April Link Up Chronic Voice

April Link Up with A Chronic Voice!

I’m sorry for the lack of posts recently, it’s been a manic year already for me, full of ups and downs. I’ve had a rough couple of months in my personal life, but I have still managed to complete my THIRD half marathon and get a personal best! I have also climbed 2 mountains this year already (Helvellyn in the Lake District and Kinder Scout in the Peaks) and I am now on nearly 50 Park Runs. I have also done two 10K races and got a personal best on Sunday just gone (55.30).

I’m now in half marathon training mode and my FOURTH one (??!) is at the end of May, so watch this space. For now though, I’ve decided to get my current feelings down by taking part in a link up with A Chronic Voice – this is basically a monthly get together for anyone with a chronic illness. So, here it goes…


TIRING

The last 6 months have been tiring for me to be honest and a few weeks ago, it got to the point where if things continued, I swear I would have had a mental breakdown, no exaggeration. I have a crazy busy life, I’m always on the go. Like most people, I work full time in quite a stressful job and then I also fit in my running, gym work, seeing friends/family etc around it and sometimes it can get overwhelming. I’ve also been suffering with nerve issues/numbness in my leg which is being investigated but at the moment the Drs don’t know what is the cause, after countless tests. It could be related to my scoliosis and surgery, but the MRI scans I have had are clear and I feel like nobody is taking it seriously.

It worries me because I am so active, what if it gets worse and I cannot run again? Or even walk? So this has been tiring me out, more the not knowing. In my personal life, I have just got out of an unhealthy relationship which was tiring me out as it was constant fighting, which was quite frankly, exhausting and stressful towards the end. It was also taking up a lot of my time and energy, giving me no time to focus on myself and my own goals (including this blog, which I have neglected recently).

Prior to this, I was in a relationship for 13 years and I feel like as a result, I haven’t really had time to myself before, or really know who I am or what I want. So, now I am on my own again (sigh) but I feel like I can breathe and finally focus on myself and what I want. This may be selfish but so be it. I have spent my entire life thinking of others and sometimes you have to do what is best for yourself and your own emotional well being. Hopefully soon, I will start to feel less tired and maybe even find myself again.


EDUCATING

I try whenever I can to educate people about my condition – scoliosis (curvature of the spine). Most people have either never heard of it, or they think it’s ‘just’ a back condition. The reality is that scoliosis affects the whole body as it throws your body out of alignment. This can cause all sorts of issues – breathing problems as the rib cage is often twisted (in severe cases like mine), numbness, headaches, issues with walking and leg length in some cases, pain, discomfort, muscle spasms – the list goes on. I always love it when people message me saying that I inspire them or that they too know someone with scoliosis. I’m a member of a run club and I was surprised to discover at least 3 people with the condition who are also in the run club AND good runners no doubt!

I try to raise awareness through my blog and social media and this year I hope to continue to do so, I would also love to take part in another large fundraising event for scoliosis (I did a trek on the Great Wall of China in 2017), so watch this space!


RECEIVING

Linked to the above, I love receiving positive emails and messages from people on my Instagram and blog. It spurs me on to keep going when I am having low days with my back pain, leg issues or just feeling low in general. If I can inspire just one person, then it’s all worth it. 🙂


GIVING

Related to the tiring section, I feel like I have been giving myself to others all my life, and now it’s time for me to give some time to myself. I feel like I don’t even know myself and what I want, so how can I even be with anyone else? For the past few weeks I have been giving myself some time to heal, by making time to relax more (self care Sunday’s are my new thing). I have bought myself new bedding, a relaxing diffuser with some lavender oil, some nice candles and have also started taking more baths and doing yoga. I never usually make time for myself as I’m usually busy running round or pleasing others so it’s been quite nice to do this, and is very much needed at the moment.


QUIETING

Related to the above, with everything going on I’ve found it so hard to quieten my mind recently. I’m a massive over thinker anyway and I have struggled really badly over the last few weeks, overthinking everything that went wrong in my last relationship, was it me? Could it have been different? Is it all my fault? Have I made a mistake? I miss him, should I contact him? It’s strange because I know the relationship wasn’t healthy towards the end, and yet I still miss him and the good times we had, as we did have good times and a lot in common. 

I have also been overthinking about my leg and whether it is something bad. My head is all over the place at the moment and to be honest, it’s not in a good place. To try and quieten my thoughts I have bought an audio book on Mindfulness and I am going to try reading more, as I used to read a lot but it’s something that has fallen by the wayside a bit recently. I’m also considering counselling but I’d be worried about wasting someones time. 

Having some time to myself recently to think has been useful but sometimes thoughts and too much time alone can drive you insane 🙁


So anyway, that’s my life at the moment, how’s yours? 

Thank you for reading my ramblings – if you would like to submit your own entry – click here.

Louise X