Firstly, I just want to say a huge thank you to those who have submitted their Scoliosis Stories to my blog. It means a lot to me and I think these stories really help and inspire others who suffer with scoliosis. The latest scoliosis story comes from Lorraine, who shares her experiences with scoliosis and having scoliosis surgery in the 1970’s.
Your Scoliosis Stories: Lorraine’s Story
I was diagnosed with idiopathic scoliosis when I was 13.
I was 14 when I had my surgery and that was in 1970…a very long time ago!
Back in the day this involved a month on a Stryker frame type of bed where I was pinned down at night so I wouldn’t roll over in my sleep.
After the first month I spent 5 months in a body cast not allowed to sit or stand at all. I pretty much had to learn to walk again after that cause my muscles were so weak.
The next 6 months I wore a brace shaped like the body cast during the day. At the end of it all I was straighter by 3 inches but still had a fairly prominent rib hump.
Happily I went on to have a good life, had kids with no troubles and although I am not athletic I could walk and do exercise classes at the gym.
My biggest problem with scoliosis has been poor body self image and that continues to this day. I try to not let it bother me but still always wear baggy clothes to try and hide the rib hump.
I don’t like anyone to touch my back which limits hugs 🙁 I try to get over it but even after all of these years it is an issue for me.
In 2009 I had to have one of rods removed as it was coming thru my skin. I asked the Dr to give it to me after it was removed and it is as shiny as the day they put it in …that titanium is strong!! I am grateful that they were able to correct my curve and prevent it from getting worse.
Although scoliosis can be hard to live with it has made me who I am….Scoliosis Strong!
Thank you Lorraine for taking the time to share your scoliosis story. It sounds like you went through a lot but it’s great that you were able to go onto have a good life post surgery.
I think all of us with scoliosis can identify with your body confidence issues. I really think this is one of the most overlooked symptoms of scoliosis but it’s one not to be ignored – I’ve written a few posts on this issue (5 things I do because of my scoliosis; body image) and I really can sympathise with you.
If you’d like to have your own scoliosis story featured on this blog, simply follow this link and share your story!